How Internet Users Feel About Sharing Their Personal Health Information
Most users want to be in control when it comes to accessing their health data
US internet users are willing to share their personal health information if it can help improve their personal healthcare. According to February 2016 research, almost half of respondents said they would be willing to do so, but only if it was anonymous.
Makovsky Health and Kelton surveyed 1,035 US internet users ages 18 and older. While 42% of respondents said they would be willing to share their personal health information—if it remained anonymous—with health researchers in order to better understand a disease or improve care and treatment options, 24% of respondents said they would be willing to do so regardless of whether or not it was anonymous.
Additionally, 23% of internet users said they would be willing to share their personal health information, but only if they could choose what parts of the information were anonymous. That left just 10% who said they would not be willing, regardless of whether or not it was anonymous.
Separate August 2015 research from Rock Health found that when internet users were asked about their attitudes toward sharing personal health data, more than nine in 10 said they should be in control of who has access to it. However, eight in 10 also noted that they would share their data so they could receive better care from their doctor.